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Tuesday, October 5, 2010

Adults Count Autism Survey

Not long ago, I heard about a survey being done by the Redpath Centre on the needs of Autistic Adults. Looking at the website, I see that the purpose of the survey is to gather materials in order to advocate for better services.  Curious and always willing to help out, I emailed them, and received this reply:

Thanks for your interest in the Adults Count! Survey which is being led by The Redpath Centre. We wanted to bring you up-to-date on the project.

The survey will launch later this month and will be available for completion until spring 2011. All surveys can be completed on-line unless you request a paper version. The information gathered will be used to understand the needs of adults living with Autism Spectrum Disorders in Ontario. It will take about 30 minutes to complete. There are three versions of the survey depending on who is completing it. It can be completed by:

(1) An individual 16 years old or older who has been diagnosed with an Autism Spectrum Disorder (i.e., “Autism”, “Autism Spectrum Disorder”, “High-Functioning Autism”, “High-functioning Pervasive Developmental Disorder”, “Pervasive Developmental Disorder, Not Otherwise Specified (NOS)” or “Asperger Disorder/Syndrome”) by a professional; OR

(2) A family member (e.g., sibling, parent) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder; OR

(3) A professional (e.g., group home worker, Adult Protective Service Worker, therapist) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder.
If you have not notified us already, please let us know what version you would like to complete.
We hope to have a large number of people complete the survey to ensure the results are as comprehensive as possible, so please forward this email to individuals who may be interested. They can express their interest by emailing us at: adult.survey@redpathcentre.ca.
Thanks again for your interest in this important project. If you have any questions do not hesitate to contact us.
Given the admirable goal of the survey, and the mission of the centre, I decided to pass this along for anyone who might be interested.


  1. Are they interested only in participants from Ontario, or Canada?

  2. That's a good question. They don't state specifically, but from their use of "province-wide", I think that they're looking for autistics in Ontario.

    Could always email them and ask though.


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